Healthcare perceptions and concerns among individuals with osteogenesis imperfecta and their caregivers in Germany

Introduction: The IMPACT Survey explored self-reported experiences of the clinical, humanistic, and economic impact of osteogenesis imperfecta (OI), a rare hereditary connective tissue disorder associated with low bone mass, increased bone fragility and variable secondary features. Here we present findings on perceptions and concerns associated with healthcare among adults with OI and caregivers (CG) of individuals with OI in Germany.