Survey identifies new priorities for pulmonary fibrosis research, highlighting diagnosis and biomarkers.
In 2019, we published the top 10 research priorities for pulmonary fibrosis (PF) as identified by people living with PF, carers and healthcare professionals. Five years on, we report on the updated research priorities. The study involved an online questionnaire (181 respondents); an in-person workshop (25 participants) to discuss priorities and establish final list for ranking, and a second online questionnaire with 31 research questions for ranking (252 respondents). Preservation of lung health and alleviating symptom burden remained important. New priorities included achieving a rapid diagnosis and developing biomarkers. The updated priorities will guide research efforts to ensure alignment with important needs.
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Tikellis et al. (2025) studied this question.
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