An Innovative Mindfulness Program for People with Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis (ALS) is a fatal progressive neurodegenerative disorder that involves the impairment and eventual death of motor neurons leading to loss of voluntary muscle control. Currently there is no cure for ALS or its progression. The devastating consequences of the disease often result in depression, anxiety, and hopelessness for the ALS patient and also for their caregivers. There are very few therapeutic interventions for enhancing quality of life in ALS patients. We developed and implemented a novel mindfulness program for people with ALS. The program included adaptations to core practices from the 8-week Mindfulness-Based Stress Reduction program and other meditations including compassion and imagery practices. The program was offered as a six-week live virtual program, meeting once a week for 90 minutes. A total of 27 people with ALS were recruited into the program. Ninety percent of the participants completed the six-week online program, attending 5 or more sessions. In post-program interviews participants shared that they found the practices to be beneficial in reducing stress and anxiety and increasing acceptance. They also appreciated the live group sessions and the sense of community that was fostered. This innovative mindfulness meditation program appears to be feasible and acceptable, and a promising intervention for people with ALS.