Living with tracheostomy ventilation for motor neurone disease: a qualitative study of family member perspectives

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Key Points

Family members describe a mix of emotional and practical challenges while caring for those with tracheostomy ventilation for motor neurone disease.
The study highlights that caregivers experience significant stress and require support to manage their own well-being while aiding patients.
Qualitative methods were employed to gather in-depth insights from family members who provide care for individuals on tracheostomy ventilation.
Understanding family dynamics in caregiving can inform better support systems and interventions for those affected by motor neurone disease.

Qualitative study explores family experiences with caregiving in tracheostomy ventilation for MND patients, indicating emotional challenges involved.

Purpose To examine the experiences of family members caring for people with motor neurone disease (MND) who use tracheostomy ventilation.

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Wilson et al. (2025) studied this question.

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