“Te Quiero Mucho (I Love You Very Much)”: Community-Engaged Research on Palliative Family Caregiving Education with a Hispanic/Latino Community

Using a community-engaged approach, this mixed-methods, pre-post interventional study aimed to explore a novel approach to providing palliative family caregiving education to Hispanics/Latinos in the United States (US). Abbreviated, culturally adapted modules from the End-of-Life Nursing Education Consortium (ELNEC)-México curriculum were administered to participants in a half-day workshop in the southern US, in partnership with a community advisory board, academic researchers, and an end-of-life care home. The intervention was delivered in a bilingual, in-person setting. A total of 44 participants completed the workshop with a pre-post measure of their comfort discussing and providing palliative family caregiving. Results showed clinically meaningful increases in comfort and positive evaluations of the content’s clarity, usefulness, and cultural relevance. Additionally, two workshop interpreters shared insights on barriers and facilitators to delivering palliative content. Findings suggest that classroom-based education delivered by native-Spanish- speaking palliative care professionals may be a promising model for reaching underrepresented communities. This study demonstrates the importance of cultural and linguistic tailoring in serious illness education and offers practical suggestions for nurses and other health professionals seeking to equitably support diverse family caregivers.