Synapse
⌘+K
Synapse
PulseExploreClubsResearchersJournals
Instagram
HomeClubsExplore
November 18, 2025Journal of Adolescent and Young Adult Oncology

Disrupted Independence—Supporting Adolescents and Young Adults with Sarcoma in Maintaining Autonomy: A Qualitative Study

View Full Paper
Ask AI
Bookmark
Share

Authors

VVVinayak VenkataramanBMBridgette MerrimanARAnna Revette

Discussion

Loading...

Member takes

Overview

Qualitative study explores treatment challenges and unmet support needs in adolescents and young adults with sarcoma, highlighting autonomy issues.

Key Points

  • Characterize unmet needs of adolescents and young adults with sarcoma to improve care strategies.
  • Conducted semistructured focus groups via Zoom with AYAs treated primarily at Dana-Farber Cancer Institute
  • Focused on treatment experiences, decision-making, and effects on daily life
  • Audio recorded, transcribed, and thematically analyzed discussions
  • Identified loss of agency and mobility as negatively impacting well-being
  • Transition from active treatment to surveillance highlights autonomy challenges
  • Participants expressed desire for earlier introduction of supportive services

Cite This Study

Venkataraman et al. (2025) studied this question.

synapsesocial.com/papers/6924feebc0ce034ddc351945https://doi.org/10.1177/21565333251397787
View Full Paper
Ask AI
Bookmark
Share

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Unique Challenges in Sarcoma Care for Adolescents and Young Adults2026
  2. 2All Hands on Deck: A Novel Collaborative Model for Care Provision in Young Adult Oncology.2025 · 1 citations
  3. 3Exploring Key Unmet Supportive Care Needs of Adolescent and Young Adult Cancer Patients: A Qualitative Study to Inform Regional Program Development2026
  4. 4Maintaining Agency during Adolescent Cancer: Retrospective Narratives among Young Adult Survivors — A Qualitative Content Analysis2026
  5. 5Social support resources in adolescents and young adults with advanced cancer: a qualitative analysis2024 · 16 citations