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November 13, 2025JAMA Network OpenOpen Access

National Alliance of Sickle Cell Centers Consensus Recommendations on Sickle Cell Disease Health Maintenance

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Authors

SJSeethal A. JacobMFMelissa Frei-JonesSRSana Saif Ur Rehman

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Overview

Expert consensus develops preventive care and treatment standards for sickle cell disease, emphasizing lifelong management and screening.

Key Points

  • To provide updated recommendations for managing sickle cell disease and its comorbidities across the lifespan.
  • Consensus panels held for different age groups (0-2 years, 2-18 years, and >18 years).
  • 41 pediatric and adult experts reviewed literature and developed recommendations.
  • Panel discussions engaged 81 recognized SCD centers during final voting.
  • Developed standards for preventive care including screening recommendations.
  • Outlined management strategies for acute complications.
  • Identified gaps in current evidence that require further research.

Cite This Study

Jacob et al. (2025) studied this question.

synapsesocial.com/papers/692523bbc0ce034ddc354a13https://doi.org/10.1001/jamanetworkopen.2025.43421
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1National alliance of sickle cell centers consensus recommendations for defining an adult sickle cell disease specialist2025
  2. 2Implementation of a comprehensive sickle cell center leads to improved access to care and decreased acute care use2026
  3. 3Sickle cell disease: a comparative perspective on global and national initiatives2024 · 24 citations
  4. 4The right patient, the right treatment: tailoring sickle cell disease care2025 · 1 citations
  5. 5Sickle cell disease 115 years later: improving health outcomes through policy, research, and collaboration, to achieve health equity2026