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December 8, 2025Blood

Shared decision making for immune thrombocytopenia (ITP) treatment: Data from the ITP natural history study registry

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Authors

KWKevin Doyoon Won

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Overview

Natural history study reveals shared decision making enhances treatment strategies in ITP, suggesting need for multidisciplinary care.

Key Points

  • To evaluate the frequency of shared decision-making in treatment choices for patients with immune thrombocytopenia (ITP).
  • Prospective data collected from 123 participants with ITP
  • Utilized Physician Satisfaction survey from the ITP Natural History Study Registry
  • Analyzed data using descriptive statistics, chi-squared analysis, and Fischer exact tests
  • 61 participants had a provider relationship longer than five years
  • 89% of patients were satisfied with their care; 93% found their providers attentive
  • SDM was prioritized by 89% of ITP healthcare providers

Cite This Study

Kevin Doyoon Won (2025) studied this question.

synapsesocial.com/papers/69362f694fa91c937236dea2https://doi.org/10.1182/blood-2025-3041
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1The State of Shared Decision‐Making in Immune Thrombocytopenia: A Narrative Review and Health Care Provider Perspective2026
  2. 2Patient-centric care in primary immune thrombocytopenia (ITP): shared decision-making and assessment of health-related quality of life2024 · 4 citations
  3. 3Patient survey in immune thrombocytopenia (<scp>ITP</scp>): Identifying unmet needs related to treatment and disease control in patients living in the United States2025 · 2 citations
  4. 4Real‐World Management of Pediatric Persistent and Chronic ITP: A Cross‐Sectional Study of Treatment Practices and Decision‐Making2026
  5. 5Clinician’s knowledge and awareness of patient-reported outcomes in immune thrombocytopenia: Results of a national survey (ITP NET, GIMEMA Working Group Anemia and Thrombocytopenia)2025