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This research aims to analyze treatment patterns and outcomes in hemophilia patients in Korea through a comprehensive registry.

December 8, 2025BloodOpen Access

Retrospective cohort analysis of treatment patterns and bleeding outcomes in the Korean bleeding disorder registry (KBDR)

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Retrospective cohort reveals prophylactic treatment impact on bleeding outcomes in hemophilia, suggesting improved clinical management.

This research aims to analyze treatment patterns and outcomes in hemophilia patients in Korea through a comprehensive registry.
Conducted a retrospective cohort analysis using data from the Korean Bleeding Disorder Registry (KBDR).
Collected demographic, clinical, and treatment data from multiple hemophilia treatment centers across Korea.
Stratified data by disease severity and age for detailed outcomes analysis.
High prophylactic treatment rates were observed, particularly in younger and severely affected patients.
Median annual joint bleeds were low, indicating effective bleeding control in patients on prophylaxis.
Clinical data derived from 2,908 registered patients showcases the registry's comprehensive insights into hemophilia management.

Hae Won Lee (2025) studied this question.

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