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December 13, 2025OTJR Occupational Therapy Journal of ResearchOpen Access

Lived Experience Engagement in Service Design and Improvement: Investigating Meaning and Impact

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Authors

YWY. WongCWCarolynne WhiteALAislinn Lalor

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Overview

Qualitative analysis using semi-structured interviews highlights the impact of lived experience in mental health service development and decision-making.

Key Points

  • This research aims to explore the personal meaning and impact of lived experience engagement in mental health services.
  • Conducted six semi-structured interviews with consumer and carer volunteers at an Australian community mental health service.
  • Utilized an interpretative phenomenological approach for data analysis.
  • Guided by a steering group formed by staff with lived expertise.
  • Identified five themes related to the experiences of consumers and carers in mental health service design.
  • Highlighted the significance of creating supportive environments for participation in decision-making.
  • Emphasized the importance of valuing diverse opinions and providing paid remuneration for lived experience roles.

Cite This Study

Wong et al. (2025) studied this question.

synapsesocial.com/papers/694018f82d562116f28f5e1ehttps://doi.org/10.1177/15394492251396021
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1An Exploratory Study of Research Needed for the Improvement of Care and Services for Persons with a Lived Experience of Mental Health Challenges2026
  2. 2Scoping Review of Outcome Measures Used in Lived Experience‐Led Mental Health Services2026
  3. 3Exploring the value of lived experience in a mental health research centre2026
  4. 4Exploring the benefits and challenges of lived and living experience among support workers in the alcohol, drug and mental health workforce in Australia2026
  5. 5How Lived Experience Advisory Groups Contribute to the Design and Conduct of Mental Health Research2026