Caregiving Experiences Among Carers of Moderate and Severely Dependent Stroke Survivors

Informal carers are essential to post-stroke recovery in Malaysia but often encounter significant challenges with minimal support. This qualitative study examined the lived experiences of 10 carers of stroke survivors with moderate to severe dependency in Klang Valley. Guided by Schlossberg’s transition theory, in-depth interviews were analyzed using inductive thematic analysis. Five main themes emerged: (1) focus shifted toward the stroke survivors, (2) caregiving repercussions, (3) lack of resources, (4) ways of surviving hardships, and (5) beauty emerging from hardships. Findings highlight the public health importance of integrating carer support into post-stroke services, particularly in aging societies. Policy measures should include structured carer training, expanded community rehabilitation, workplace flexibility, and stronger linkages between health care, social services, and non-governmental organizations. Addressing these needs can enhance carer wellbeing, improve survivor outcomes and reduce long-term health system burdens.