Report presents findings on developing a cancer patient-driven quality of life toolkit, impacting health policy.
This report provides detail on the results from workpackage 4 (WP4). This workpackage is part of an EU funded project “"EUonQoL-Quality of Life in Oncology: measuring what matters for cancer patients and survivors in Europe” grant agreement n° 101096362). The overall project aims to develop, pilot and validate the European Oncology Quality of Life toolkit (EUonQoL-Kit), a patient co-researcher driven, unified system for the assessment of quality of life (QoL) based on the evaluations and preferences of cancer patients and survivors. The EUonQoL-Kit will be developed from the patient perspective, administered digitally, available in all 27 European Union (EU) and associated countries languages, applicable for use in future, periodic surveys to contribute to the EU’s mission on cancer and inform health policy. Workpackage 4’s aims are to develop the toolkit using mixed methods and then present information of initial usability testing. This report describes the results of the mixed methodology and process of triangulation of results to develop the toolkit.
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Gilbert et al. (2023) studied this question.
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