Expert Consensus Approach to Developing Inpatient Common Data Elements for Neonatal Encephalopathy Research

Key Points

• The aim is to create standardized common data elements for neonatal encephalopathy to enhance research quality.
• Expert consensus approach to identify key data elements.
• Focus on clinical and research definitions of HIE.
• Emphasis on family-centered follow-up data post-discharge.
• Establishment of foundational common data elements for NE/HIE research.
• Identification of gaps in current definitions that require addressing in future studies.