Expert consensus develops common data elements for neonatal encephalopathy, indicating the need for standardized definitions and follow-up data.
The CDEs are the first of several important steps to further standardize research and reporting of NE/HIE investigations to perform more efficient and powerful clinical research in the field moving forward. Future studies need to establish a clinical and research definition of HIE and develop CDEs for collecting long-term, family-centered follow-up data postdischarge.
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Peeples et al. (2026) studied this question.
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