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February 19, 2026Prenatal Diagnosis1 citationsOpen Access

Association Between Institutional Services and Counseling Options in Fetal Cardiology

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CVCaroline ValdesJCJoanne S. ChiuCRChristina Ronai

Key Points

  • This research examines how access to institutional services affects the counseling content provided to patients with congenital heart defects.
  • Administered an anonymous survey to fetal cardiologists
  • Assessed counseling discussions for hypoplastic left heart syndrome
  • Used chi-square analysis to compare counseling content based on available services
  • Conducted multivariable logistic regression to control for practice characteristics
  • Statistically significant association found between access to termination services and counseling content
  • Providers from institutions without termination services were less likely to include it in discussions
  • Association remained significant after controlling for practice size, geographic setting, and institutional affiliation

Abstract

ABSTRACT Background Congenital heart defects (CHD) are the most common congenital anomaly with increasing prevalence and expectation of prenatal diagnosis and comprehensive counseling. Recent changes in state and federal laws have altered the availability of some services, potentially affecting counseling content. We describe the association between access to services and content of prenatal counseling in critical CHD. Methods An anonymous survey was distributed to fetal cardiologists. Respondents indicated characteristics of their counseling discussion for newly diagnosed hypoplastic left heart syndrome, including intervention, palliative care involvement, and termination. Chi‐square analysis assessed whether counseling content differed based on institutional services available. Results Of 138 respondents, there was a statistically significant association between institutional access to termination and whether providers included termination as an option in counseling. In multivariable logistic regression analyses, this association remained significant after accounting for practice characteristics, with no evidence that geographic setting, practice size, or institutional affiliation modified the association. Providers at institutions where termination was not available were consistently less likely to include this pregnancy option in counseling. Conclusion Providers at institutions where termination is not available are less likely to include this pregnancy option in counseling, suggesting that institutional services may alter patients' access to comprehensive counseling.

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Cite This Study

Valdes et al. (2026) studied this question.

synapsesocial.com/papers/6996a82decb39a600b3ee9a4https://doi.org/10.1002/pd.70094
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