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February 20, 2026BMC CancerOpen Access

Adolescents’ perceptions and lived experiences of cancer patient-hood: a qualitative study

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Authors

MAMercy AkambasisaMbarara University of Science and TechnologyEKElizabeth KemigishaMbarara University of Science and TechnologyKCKendall CarpenterBoston Children's Hospital

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Implication

Qualitative study reveals adolescents with cancer face emotional distress but benefit from education and support from health workers.

Key Points

  • To explore adolescents' perceptions and lived experiences regarding their cancer diagnosis and its impact on quality of life.
  • Conducted a qualitative study in western Uganda with 30 adolescents aged 10-17 diagnosed with cancer
  • Utilized in-depth interviews to gather data about perceptions and experiences
  • Employed NVivo 12 software for coding and generating themes from the data
  • Participants had initially negative perceptions of their cancer diagnosis, which improved with treatment
  • Common diagnoses included leukemia, lymphoma, and solid tumors
  • Negative experiences involved emotional distress and interrupted education, while positive experiences included symptom improvement and support from health workers

Cite This Study

Akambasisa et al. (2026) studied this question.

synapsesocial.com/papers/6997b911baf9c852d8c25fe2https://doi.org/10.1186/s12885-026-15747-3
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