Patient and public involvement and engagement in clinical trials at scale: Analysis of the first 3250 responses on the POrtal for Patient and Public Engagement in Dementia (POPPED). | Synapse
March 2, 2026
Patient and public involvement and engagement in clinical trials at scale: Analysis of the first 3250 responses on the POrtal for Patient and Public Engagement in Dementia (POPPED).
Key Points
This research aims to analyze patient and public involvement in clinical trials focused on dementia using a web-based platform.
Analyzed 3250 responses from the Patient and Public Engagement Portal (POPPED)
Assessed the effectiveness of web-based patient and public engagement
Evaluated the impact on dementia research
Web-based patient and public involvement effectively informs dementia research
Provides a reusable resource for future studies
Demonstrates scalability of engagement across various trials
Abstract
Web-based PPIE can effectively inform dementia research at scale and provides a reusable resource for other studies.