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March 3, 2026Open Access

Understanding Caregiver Knowledge to Improve Home-Based Management of Sickle Cell Disease in Zaria, Nigeria

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Authors

MFMusilimat Hamza FaleyeHLHadiza LawalOAOlukemi Ajamufua

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Overview

Qualitative case study explores caregiver knowledge on sickle cell disease in Nigeria, suggesting education improvements.

Key Points

  • This study aims to explore the knowledge and educational needs of home-based caregivers managing children with sickle cell disease.
  • Qualitative case study design
  • In-depth interviews with ten purposively selected caregivers
  • Interviews conducted in Hausa and translated to English
  • Thematic analysis of interview data
  • Caregivers had limited understanding of the genetic basis of sickle cell disease
  • Some knowledge of key symptoms was present among caregivers
  • Caregivers demonstrated basic disease management and healthcare seeking behavior
  • Four main themes identified: SCD aetiology, symptoms, complications awareness, and SCD type knowledge

Cite This Study

Faleye et al. (2026) studied this question.

synapsesocial.com/papers/69a67f4af353c071a6f0b293https://doi.org/10.3390/hemato7010007
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1IMPACT OF HEALTH EDUCATION INTERVENTIONS ON THE BURDEN OF SICKLE-CELL CONDITION AMONG PRIMARY CAREGIVERS IN OSUN STATE, NIGERIA2026
  2. 2Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers2026
  3. 3A mixed-method study on awareness, haemoglobin phenotype result accuracy and sickle cell knowledge among parents of children with sickle cell disease in ibadan, Nigeria2025
  4. 4Knowledge, Attitude, and Perception Towards Sickle Cell Disease Among Residents of Oke-Ose Community, Ilorin, Kwara State.2025
  5. 5Understanding the Needs of Healthcare Professionals Involved in Sickle Cell Disease Management in Nigeria: A Grounded Theory Study2026