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March 15, 2026Journal of public health researchOpen Access

A mixed-methods evaluation to optimize the existing hospital based sickle cell disease care model from a tribal area of Gujarat, India

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Authors

KDKapilkumar DaveANAbhay NirgudeGDGayatri Desai

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Overview

Mixed-methods evaluation reveals high mortality and low adherence in sickle cell disease care, highlighting the need for improved health literacy and support systems.

Key Points

  • The aim is to optimize a hospital-based sickle cell disease care model for a tribal community in Gujarat, India.
  • Mixed-methods evaluation at Kasturba Hospital, SEWA Rural, Gujarat.
  • Quantitative analysis of SCD registry data assessing intervention coverage and outcomes.
  • Qualitative interviews with patients, caregivers, and healthcare providers to explore barriers to care.
  • High morbidity and mortality are linked to nutritional deficiencies and low clinic adherence.
  • Hospitalization rates averaged 64.4 per 100 person-years due to care gaps.
  • Hydroxyurea was prescribed to 56% of eligible patients, yet clinical outcomes were poor.

Cite This Study

Dave et al. (2026) studied this question.

synapsesocial.com/papers/69b6068883145bc643d1c76ahttps://doi.org/10.1177/22799036261428569
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Exploring barriers to healthcare access among individuals with sickle cell disease and their caregivers in the tribal areas of Rajasthan: application of socio-ecological model2026
  2. 2Advancing sickle cell disease care in India from prevention to management: Challenges and way forward2026
  3. 3Effect of health educational intervention on early detection of sickle cell disease among adolescent population in tribal areas of East Singhbhum district, Jharkhand: A study protocol2026
  4. 4Epidemiology and Clinical Impact of Sickle Cell Disease in India: Genetic Diversity, Regional Inequities, And Contemporary Management Approaches - A Review2026
  5. 5Sickle cell disease: a comparative perspective on global and national initiatives2024 · 24 citations