What question did this study set out to answer?

This study aims to explore perceptions of healthcare providers, patients, and caregivers regarding the burden of drug-resistant epilepsy and its impact on quality of life.

March 29, 2026Epilepsia OpenOpen Access

Perspectives on the burden of drug‐resistant epilepsy and treatment priorities: Findings from a multistakeholder survey

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This study aims to explore perceptions of healthcare providers, patients, and caregivers regarding the burden of drug-resistant epilepsy and its impact on quality of life.
Multinational, cross-sectional online survey
Participants included healthcare providers, patients, and caregivers
Data collection period from March to August 2024
Sample included 213 stakeholders, primarily healthcare providers
Analysis compared perspectives on treatment priorities and quality of life
58% of healthcare providers were neurologists, 42% were epileptologists
Patients represented by caregivers were younger and had a higher seizure frequency
Significant impact of drug-resistant epilepsy on quality of life aspects reported
Low satisfaction with current treatments among stakeholders was noted
Differences in priorities between patients/caregivers and healthcare providers were highlighted

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Implication

Survey explores the impact of drug-resistant epilepsy on quality of life, highlighting treatment disagreements among stakeholders.

Cite This Study

Lattanzi et al. (2026) studied this question.

synapsesocial.com/papers/69c8c3a8de0f0f753b39e981 https://doi.org/10.1002/epi4.70226

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Perspectives on the burden of drug‐resistant epilepsy and treatment priorities: Findings from a multistakeholder survey

Key Points

Discussion

Implication

Cite This Study

Perspectives on the burden of drug‐resistant epilepsy and treatment priorities: Findings from a multistakeholder survey

Key Points

Discussion

Implication

Cite This Study

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