Parent Perspectives on the Diagnosis, Management, and Family Impact of Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis Syndrome

For most children with PFAPA, diagnosis requires more than four healthcare visits and over a year of time. PFAPA is a self-limited condition but poorly impacts families through missed school, missed workdays, and other family life disruptions. Parents of children with PFAPA want to be heard when they express concerns about frequent fever episodes and want providers to be better informed about PFAPA and available treatment options.