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April 19, 2021SHILAP Revista de lepidopterologíaOpen Access

Assessment and management of disease burden and quality of life in patients with hereditary angioedema: a consensus report

Konrad Bork John Anderson Teresa Caballero Timothy Craig Douglas Johnston H. Henry Li Hilary Longhurst Cristine Radojicic Marc A. Riedl

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Abstract

This consensus report builds on existing guidelines by expanding the assessment of disease burden and QoL measures for patients with HAE.

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Bork et al. (2021) studied this question.

synapsesocial.com/papers/69d8f1e62c87b79b92d183bc https://doi.org/10.1186/s13223-021-00537-2

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Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

1Hereditary AngioedemaOriginal Research · 2008 · 699 citations
2Evidence‐based recommendations for the therapeutic management of angioedema owing to hereditary C1 inhibitor deficiency: consensus report of an International Working GroupOriginal Research · 2011 · 349 citations
3Hereditary angioedema with normal C1 inhibitor function: Consensus of an international expert panelReview · 2012 · 173 citations
4Hereditary angioedema with a mutation in the plasminogen geneOriginal Research · 2017 · 306 citations
5Hereditary angioedema cosegregating with a novel kininogen 1 gene mutation changing the N‐terminal cleavage site of bradykininGenetic Association Study · 2019 · 201 citations

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