What question did this study set out to answer?

Identify the causes and consequences of respondent burden in patient-reported outcome data collection across clinical research and healthcare practice.

October 12, 2022SHILAP Revista de lepidopterologíaOpen Access

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

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Identify the causes and consequences of respondent burden in patient-reported outcome data collection across clinical research and healthcare practice.
Examined the roles of patient-reported outcomes in clinical trials, regulatory evaluations, and routine value-based healthcare.
Assessed factors contributing to respondent burden and their downstream impacts on missing data and reporting quality.
Unaddressed respondent burden directly contributes to high rates of missing data and compromised reporting in clinical research.
Suboptimal data completeness impairs regulatory decision-making, clinical monitoring, and treatment tailoring in routine care.

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Implication

Review highlights strategies to reduce respondent burden during patient-reported outcome collection in clinical trials, suggesting improved data completeness for regulatory and healthcare decisions.

Cite This Study

Aiyegbusi et al. (2022) studied this question.

synapsesocial.com/papers/69d985e4c7f0c3ae80a3dcf6 https://doi.org/10.1038/s41467-022-33826-4

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Implication

Review highlights strategies to reduce respondent burden during patient-reported outcome collection in clinical trials, suggesting improved data completeness for regulatory and healthcare decisions.

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

Key Points

Discussion

Implication

Cite This Study

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

Key Points

Discussion

Implication

Cite This Study

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