Involving youth with intellectual and/or developmental disabilities as collaborators in a comparative effectiveness trial: A community-engaged research approach

Kristin Berg; Deana Herrman; L Bernard; Cheng‐Shi Shiu; Iulia Mihaila; Catherine K. Arnold; Kruti Acharya; Tracy R. G. Gladstone; Christianna Danguilan; Hélène A. Gussin; Pablo Pérez; Anja Herrman; Aaron Shengting; Ann Thornton; Michael Gerges; Caterina Patriarca; Jenny Pak; Benjamin W. Van Voorhees

doi:10.1016/j.conctc.2024.101395

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Abstract

Researchers and clinicians seeking to engage the historically underserved population of disabled youth in clinical trial research can leverage our findings to enhance the accessibility and inclusivity of their studies.

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Berg et al. (2024) studied this question.

synapsesocial.com/papers/69d9d84a0d540cafc58379a8 https://doi.org/10.1016/j.conctc.2024.101395

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Involving youth with intellectual and/or developmental disabilities as collaborators in a comparative effectiveness trial: A community-engaged research approach

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Involving youth with intellectual and/or developmental disabilities as collaborators in a comparative effectiveness trial: A community-engaged research approach

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Abstract

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