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April 11, 2026Humanities and Social Sciences Communications2 citationsOpen Access

The unheard path: carer loneliness and epistemic injustice in critical and historical view

FCFred Cooper

Key Points

  • This analysis aims to explore the experiences of family carers and the concept of epistemic injustice during the COVID-19 pandemic.
  • Longitudinal interviews conducted with family carers in the UK during the COVID-19 pandemic.
  • Historical and philosophical analysis contextualizing carer experiences.
  • Interdisciplinary approach incorporating feminist epistemology and medical humanities.
  • Carer loneliness is intricately linked to feelings of shame and social invisibility.
  • Historical discourse often excludes carers from discussions about health and thriving.
  • The analysis shows overlapping social abandonments affecting carers across different timeframes.

Abstract

Abstract This article analyses a corpus of longitudinal interview evidence on the experiences of family carers in the UK during the COVID-19 pandemic, and situates them in a longer historical, philosophical, and political discussion. Drawing on feminist epistemology, medical humanities, loneliness studies, and interdisciplinary scholarship on care, it rethinks carer loneliness and epistemic constraint as the mingled products of a series of overlapping abandonments, across short, medium, and long-term temporalities. Discussing loneliness, touch, solitude, shame, and social and cultural invisibility in the stories told by carers about their lives before and during COVID, it then pulls focus to a historical analysis of post-war discourses on care, which simultaneously noted and naturalised the exclusion of carers from emergent imaginings of health and thriving.

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Cite This Study

Fred Cooper (2026) studied this question.

synapsesocial.com/papers/69d9e66378050d08c1b76bc6https://doi.org/10.1057/s41599-026-07113-2
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