Jurors highlight concerns over data misuse in genomic screening, indicating a need for cautious data management.
To maintain public trust in Australian newborn screening, programmes should take a more conservative approach to data extraction and storage until concerns are addressed and safeguarding conditions implemented. Jurors' key concerns include identifiability of genomic data, risk of data misuse and potential to undermine trust and participation in newborn screening.
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Aquino et al. (2026) studied this question.
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