Cross-sectional study assesses quality of life in sickle cell disease, suggesting adherence improves outcomes.
Key Points
The aim is to evaluate health-related quality of life in sickle cell disease patients and understand how treatment adherence influences disease outcomes.
Conducted a cross-sectional study at the Hematology Clinic from January 2009 to December 2011.
Measured health-related quality of life using the WHOQOL-BREF assessment tool.
Analyzed data with the Statistical Package for Social Sciences.
115 patients completed the quality of life questionnaire.
75.7% of patients had severe sickle cell disease and reported low quality of life scores.
Pain episodes were the leading cause of hospitalization, affecting 51.3% of patients.
Patients not adhering to treatment showed significantly worse quality of life scores.