What are the causes of death and patterns of care in the last year of life for adults with congenital heart diseases?
Adults with congenital heart disease experience high rates of intensive and potentially avoidable care at the end of life, indicating a need for improved end-of-life care strategies.
There is a high use of intensive and potentially avoidable care at the end of life. This may imply that end-of-life care provision can be improved. Future studies should further examine end-of-life care provision in the light of patient's needs and preferences, and how the healthcare system can adequately respond.
Bulck et al. (Sun,) studied this question.