What question did this study set out to answer?

To examine the scientific utility and privacy challenges surrounding nationwide registry data linked by personal identification numbers.

March 31, 2000Science

When an Entire Country Is a Cohort

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Authors

LFLone FrankDanish Ministry of Defence

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Implication

Policy analysis highlights tensions between scientific data linkage and privacy regulations in nationwide cohorts, indicating ongoing governance challenges for registry research.

Key Points

To examine the scientific utility and privacy challenges surrounding nationwide registry data linked by personal identification numbers.
Evaluation of comprehensive population-level statistics and health registry systems.
Assessment of regulatory policies governing scientific access to data linked via personal identification numbers.
Researchers advocate for easing access restrictions to maximize the epidemiological utility of national statistics.
Government authorities maintain regulatory restrictions citing risks to individual citizen privacy.

Cite This Study

Lone Frank (2000) studied this question.

synapsesocial.com/papers/69dd2b790a7b4bc8c4100e45 https://doi.org/10.1126/science.287.5462.2398

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Implication

Policy analysis highlights tensions between scientific data linkage and privacy regulations in nationwide cohorts, indicating ongoing governance challenges for registry research.

When an Entire Country Is a Cohort

Discussion

Member takes

Implication

Key Points

Cite This Study

When an Entire Country Is a Cohort

Discussion

Member takes

Implication

Key Points

Cite This Study

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