The Individualized Neuromuscular Quality of Life is a validated muscle disease specific measure of quality of life developed from the experiences of patients with muscle disease and can be used for individuals or large samples.

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Vincent et al. (Mon,) studied this question.

synapsesocial.com/papers/69dd52248557d5ab8f40cea2 https://doi.org/https://doi.org/10.1212/01.wnl.0000257819.47628.41

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

1The disability paradox: high quality of life against all odds1999 · 2,022 citations
2Quality of life: A process view1997 · 78 citations
3Linking Clinical Variables With Health-Related Quality of Life1995 · 2,976 citations
4Disablement in the Community1989 · 90 citations
5A comparative study of outcome in myositis and other musculoskeletal disorders assessed using the Nottingham health profile.2001 · 29 citations

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

1The disability paradox: high quality of life against all odds1999 · 2,022 citations
2Quality of life: A process view1997 · 78 citations
3Linking Clinical Variables With Health-Related Quality of Life1995 · 2,976 citations
4Disablement in the Community1989 · 90 citations
5A comparative study of outcome in myositis and other musculoskeletal disorders assessed using the Nottingham health profile.2001 · 29 citations