October 16, 2024Open Access

Patient-Reported Outcomes Among Adults With Congenital Heart Disease in the Congenital Heart Initiative Registry

SLScott LeezerHealth Strat (Kenya)RMRittal MehtaChildren's National AAAnushree AgarwalPediatric / Congenital Cardiology

Structured PICO

Population

Adults living with congenital heart disease (CHD) in the Congenital Heart Initiative (CHI) Registry

Outcome

Patient-reported outcomes (mood disorders and health-related quality of life)patient reported

Adults with congenital heart disease frequently experience mood disorders despite generally reporting good health-related quality of life.

Abstract

In this cohort study of adults living with CHD, many patients reported mood disorders, but most reported good health-related quality of life. The CHI, the largest registry of adults with CHD, is poised to facilitate multicenter research with the goal of improving clinical outcomes for all adults with CHD.

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Cite This Study

Leezer et al. (Wed,) studied this question.

synapsesocial.com/papers/69dd5e0b4917c2595e101644 https://doi.org/https://doi.org/10.1001/jamanetworkopen.2024.39629

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