Survey study reveals differing end-of-life priorities across patients, families, and clinicians, highlighting the necessity of individualized care.
Although pain and symptom management, communication with one's physician, preparation for death, and the opportunity to achieve a sense of completion are important to most, other factors important to quality at the end of life differ by role and by individual. Efforts to evaluate and improve patients' and families' experiences at the end of life must account for diverse perceptions of quality. JAMA. 2000;284:2476-2482.
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Karen E. Steinhauser (2000) studied this question.
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