Parenting adolescents with rare diseases: representations of youth strengths and difficulties and perceived parental competence

Concetta Polizzi; Marianna Alesi; Serena Iacono Isidoro; Margherita Siciliano; Roberta Giodice; Rosa Maria Rita Scalici; Ambra Gentile

doi:10.1016/j.actpsy.2026.106938

April 24, 2026Acta PsychologicaOpen Access

Parenting adolescents with rare diseases: representations of youth strengths and difficulties and perceived parental competence

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Key Points

To explore the representations of youth strengths and difficulties in parenting adolescents with rare diseases and assess perceived parental competence.
Explored family-responsive approaches in clinical settings.
Emphasized routine monitoring of parental wellbeing.
Supported strengths-based parenting strategies.
Identified the need for longitudinal research for comprehensive evaluation.

Implication

Longitudinal research evaluates parental competence and youth strengths in rare disease contexts, suggesting supportive strategies.

Abstract

Findings support strengths-based, family-responsive parent work and routine monitoring of parental wellbeing in clinical/psychoeducational settings. Longitudinal research is needed to evaluate directionality.

Discussion

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Cite This Study

Polizzi et al. (2026) studied this question.

synapsesocial.com/papers/69f04d9f727298f751e71e70 https://doi.org/10.1016/j.actpsy.2026.106938

View Full Paper

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Parenting adolescents with rare diseases: representations of youth strengths and difficulties and perceived parental competence

Key Points

Implication

Abstract

Discussion

Cite This Study

Parenting adolescents with rare diseases: representations of youth strengths and difficulties and perceived parental competence

Key Points

Implication

Abstract

Discussion

Cite This Study

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