E039 Patient-led innovation in inflammatory arthritis - bridging the lived experience and clinical care

Background/Aims Although numerous arthritis charities exist, a clear gap remains in dedicated support for those living with inflammatory arthritis (IA). Many individuals experience more than one IA condition and often struggle to find resources that reflect the full scope of their lived experience. Existing information tends to be medical or condition-specific, leaving the psychosocial, emotional, and day-to-day challenges underrepresented. People affected by IA have expressed a strong desire to hear from others who truly understand the fluctuating, unpredictable nature of these conditions. In response, Inflammatory Arthritis UK (IAUK) was established to provide a holistic, patient-led space where every voice matters. Methods Founded by two individuals with a combined 50 years of lived experience of juvenile idiopathic arthritis and rheumatoid arthritis, IAUK is a charity created by people with IA, for people with IA. Our work is grounded in lived experience, community connection, and collaboration with professionals. Core initiatives include: Inflammatory! Navigating Life with IA, a weekly podcast addressing topics often overlooked in clinical settings, such as fatigue, pain, work-life balance, mental health, and relationships. Peer and community support networks that promote resilience, shared learning, and belonging. Strategic partnerships with researchers, healthcare professionals, and policymakers to ensure the patient voice informs education, research priorities, and service delivery. Results Feedback has shown that IAUK is recognised as a strong community-first charity, with a growing reputation for structured, meaningful research partnerships. IAUK has cultivated an active social media presence and increasing interest from volunteers, patients, and professionals who value its inclusive, collaborative approach. Though still a new organisation, IAUK is evolving rapidly and is already a pioneer in the digital space, through podcasting, video content, and online engagement. This digital innovation will only expand over time, strengthening its reach and impact. In recognition of its early impact, IAUK was recently named Arthritis Support Charity of the Year. Conclusion IAUK exemplifies the power of patient-led innovation in rheumatology. By amplifying lived experiences and nurturing genuine collaboration, IAUK is bridging the gap between medical understanding and everyday life with IA. Our message is simple yet powerful: “One community. Every story. All IA.” Together, we are creating a future where every person affected by inflammatory arthritis feels seen, supported, and never alone.