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April 30, 2026Lara D. Veeken

P149 A systematic review of patient reported outcome measures for lupus-specific health-related quality-of-life following COSMIN guidelines

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Authors

TPTim PicklesCardiff UniversityDMDanielle MussonLeeds Beckett UniversityDTDalila TremariasCardiff University

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Implication

Systematic review assesses measurement properties of lupus-specific PROMs, highlighting the gaps in existing tools.

Key Points

  • The aim is to systematically review the measurement properties of lupus-specific patient reported outcome measures following COSMIN guidelines.
  • Conducted a systematic review registered on PROSPERO following COSMIN guidelines.
  • Utilized a targeted search strategy across Web of Science, Embase, PubMed, and Scopus to identify relevant articles.
  • Two independent assessors will evaluate the measurement properties of eligible PROMs.
  • A narrative description of included PROMs, such as LupusQoL-US and LupusPRO, will be provided.
  • Categorization of PROMs according to COSMIN recommendations to assess measurement quality.
  • Identification of potential need for developing or modifying existing PROMs if they do not meet category A recommendations.

Cite This Study

Pickles et al. (2026) studied this question.

synapsesocial.com/papers/69f2f2221e5f7920c63879dahttps://doi.org/10.1093/rheumatology/keag121.182
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Also Consider

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  4. 4Evaluation of the psychometric properties of patient-reported outcome measures for the assessment of health-related quality of life across the European cancer continuum: a systematic review applying COSMIN methodology2026
  5. 5Psychometric properties of patient-reported outcome measures for health-related quality of life in multiple myeloma: a systematic review based on COSMIN guidelines2026