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May 10, 2026Journal of Pediatric Psychology0 citations

A systematic review of the social functioning of youth with JIA: Barriers, stigma, and resources

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KJKristina JelinkovaUniversity of CalgaryKNKaveena NatashaUniversity of CalgaryMTMarinka TwiltUniversity of Calgary

Key Points

  • This review aims to explore the social experiences of youth with juvenile idiopathic arthritis.
  • Conducted a systematic review of 18 qualitative studies published between 2014 and 2024.
  • Searched four databases: Scopus, PubMed, Web of Science, and PsycINFO.
  • Assessed study quality using the Critical Appraisal Skills Programme (CASP) Qualitative Checklist.
  • Identified six key themes affecting social experiences: physical barriers, lack of understanding, and various forms of stigma.
  • Emphasized the need for increased public awareness and peer support.
  • Recommended strategies to enhance self-advocacy skills and reduce stigma.

Abstract

OBJECTIVE: To examine the social experiences of youth with Juvenile idiopathic arthritis (JIA). METHODS: This systematic review synthesizes findings from 18 qualitative studies (2014-2024) based on a search from four databases (Scopus, PubMed, Web of Science, and PsycINFO). The studies were assessed for quality using the Critical Appraisal Skills Programme Qualitative Checklist (CASP, 2024). RESULTS: Six key themes emerged: (1) Physical Barriers to Social Interaction, (2) Lack of Understanding from Others, (3) Enacted Stigma, (4) Anticipated Stigma, (5) Internalized Stigma, and (6) Resources. CONCLUSIONS: The review findings support increasing public awareness, fostering peer support, enhancing self-advocacy skills, and implementing stigma-reduction strategies to better support the social functioning of youth with JIA. Future research should explore long-term effects of stigma and evaluate targeted interventions to improve social experiences and quality of life for this population.

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Cite This Study

Jelinkova et al. (2026) studied this question.

synapsesocial.com/papers/6a002087c8f74e3340f9b6bbhttps://doi.org/10.1093/jpepsy/jsag032
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