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Heart failure is a serious and disabling chronic disease that progresses gradually, especially if left untreated. One of the main challenges in monitoring heart failure is the prevention of cardiac decompensation: a sudden worsening of symptoms, which requires emergency hospitalization and can lead to sudden death. The authors' research, in cooperation with the “Ethics & AI” Chair of the Grenoble MIAI's 3IA Institute, is taking place in the framework of RealWorld4Clinic, a European consortium funded by European Institute of Innovation and Technology which aims to develop a new connected monitoring implant to improve heart failure monitoring and which brings together researchers from different disciplines and private and public actors. This chapter presents both the theoretical and methodological framework that justifies the interest of co-designing with patients based on affect stories, and its application in the RealWorld4Clinic project. It details the ethical and societal stakes of co-designing technological innovations with patients in the health field.
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Davat et al. (2023) studied this question.