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May 23, 2026European Journal of Human GeneticsOpen Access

“There’s no representation”: a qualitative study of attitudes and motivations towards genomic research participation among Australian South Asians

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Authors

VNVaishnavi NathanHAHeena AkbarAMAideen McInerney‐Leo

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Overview

Qualitative study explores motivations for genomic research participation, indicating cultural responsiveness is essential.

Key Points

  • The study aims to understand attitudes and motivations towards genomic research participation among South Asians in Queensland, Australia.
  • Conducted semi-structured focus groups (n=60 individuals) between April and August 2023.
  • Recorded and transcribed discussions for analysis using inductive and deductive methods.
  • Identified three thematic categories: Engagement with Genomic Research, Cultural Connections, and Trust and Relationship Building.
  • Participants showed positive attitudes towards genomic research but had low participation rates due to lack of awareness.
  • Fear of stigma and experiences of racial discrimination affected engagement in genomic research.
  • Building community trust and partnerships was essential for promoting participation.

Cite This Study

Nathan et al. (2026) studied this question.

synapsesocial.com/papers/6a1147fa48a409a3a49e08e7https://doi.org/10.1038/s41431-026-02129-3
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