What question did this study set out to answer?

To evaluate public attitudes toward using pre-existing medical records in research and investigate whether explaining selection bias increases the acceptability of research conducted without explicit consent.

June 4, 2013BMC Medical Research MethodologyOpen Access

“Let’s get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study

View Full Paper

Ask AI

Bookmark

Authors

EHElizabeth HillUniversity of Maryland, Baltimore ETEmma L. TurnerUniversity of Bristol RMRichard M. MartinUniversity of Bristol

Discussion

Member takes

Implication

A systematic review and qualitative study finds education on selection bias increases public acceptance of data use without consent, suggesting transparency can overcome recruitment barriers.

Key Points

To evaluate public attitudes toward using pre-existing medical records in research and investigate whether explaining selection bias increases the acceptability of research conducted without explicit consent.
Conducted a systematic review of literature on public attitudes regarding secondary health record use via PubMed (1966–present) and Embase (1974–present).
Conducted qualitative focus groups with 19 older men recruited from rural and suburban primary care practices in the UK.
The systematic review identified 27 studies showing that older adults and males were more willing to consent, though broad ignorance regarding research safeguards persisted.
Focus group participants grew notably more accepting of using pre-collected medical data without explicit consent after receiving education on selection bias and data governance.
Participants strongly supported NHS-affiliated research but voiced apprehensions about potential commercial exploitation and data misuse.

Cite This Study

Hill et al. (2013) studied this question.

synapsesocial.com/papers/6a11e8aefb24b1a422a5761e https://doi.org/10.1186/1471-2288-13-72

View Full Paper

Ask AI

Bookmark

Implication

A systematic review and qualitative study finds education on selection bias increases public acceptance of data use without consent, suggesting transparency can overcome recruitment barriers.

“Let’s get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study

Discussion

Member takes

Implication

Key Points

Cite This Study

“Let’s get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study

Discussion

Member takes

Implication

Key Points

Cite This Study

Also Consider

Also Consider