Key result
A survey of 289 multiple sclerosis patients in Jordan found that 96% agreed to participate in genetic studies, with 85% preferring open consent.
Population
289 multiple sclerosis patients in Jordan, female:male ratio 2:1, 88% relapsing-remitting MS, mean age of…
Design
Cross-sectional
Authors
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May support regional MS biobank planning; leaves open generalizability to other populations and prospective enrollment.
Cross-Sectional (n=289)
A high proportion of MS patients in Jordan are willing to participate in genetic research and prefer open consent, supporting the establishment of a specialized MS biobank.
Ahram et al. (2014) conducted a cross-sectional in Multiple sclerosis (n=289). Survey on willingness to participate in genetic research and biobanking was evaluated on Willingness to participate in genetic studies. A survey of 289 multiple sclerosis patients in Jordan found that 96% agreed to participate in genetic studies, with 85% preferring open consent.
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