Key result
Norwegian MS Registry and Biobank systematically collects clinical and biological data to improve MS care.
Why the study?
Systematic recording of data into national MS registries is needed to optimize treatment and define the pathogenesis of multiple sclerosis.
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Describes the establishment and purpose of the Norwegian Multiple Sclerosis Registry and Biobank for facilitating research and improving healthcare in MS.
Multiple sclerosis (MS) is a chronic inflammatory disease of the central nervous system with unknown cause and various benefits from disease modifying therapies. Systematic recording of data into national MS registries is therefore needed to optimize treatment and define the pathogenesis of the disease. The Norwegian MS Registry and Biobank was established for systematic collection of clinical and epidemiological data, as well as biological samples. Data collection is based on informed consent from the individual patients and recordings by treating neurologists. All researchers have, by application, access to data and biological samples from the Norwegian Multiple Sclerosis Registry and Biobank. By this combined effort from both patients and healthcare personnel, the Registry and Biobank aims to facilitate research for improved understanding of disease mechanisms and improved health care in MS.
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Myhr et al. (2015) studied Multiple sclerosis. Norwegian Multiple Sclerosis Registry and Biobank was evaluated. The Norwegian Multiple Sclerosis Registry and Biobank was established to systematically collect clinical, epidemiological, and biological data to facilitate research and improve MS health care.
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