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May 24, 2026Open Access

Fifteen years of community-engaged HIV research in Sweetwaters, KwaZulu-Natal: a reflection on principles, practices and frameworks

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HCHuman Sciences Research Council

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Overview

Reflection on a framework for community engagement in HIV research, highlighting principles and practices over 15 years.

Key Points

  • This chapter aims to reflect on the development of a community engagement framework in HIV research over 15 years.
  • Describes foundational principles of the community engagement framework.
  • Illustrates implementation through four phases: range, recognise, recruit, and retain/sustain.
  • Concludes with a theory of change connecting theory and practice.
  • Outlined principles include embeddedness, participatory processes, and respect for local knowledge.
  • Demonstrated successful implementation of community engagement strategies.
  • Showcased the evolution of practice-based engagement in the context of HIV research.

Cite This Study

Human Sciences Research Council (2026) studied this question.

synapsesocial.com/papers/6a12969048a0ea1665673757https://doi.org/10.14749/32377443
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  4. 4The precarious state of community engagement in African clinical trials: A systematic review of funding, workforce gaps, and the path to institutionalization2026
  5. 5Community mobilization for HIV prevention and treatment research in sub-Saharan Africa: process, strategies, and researchers' reflections2026