What question did this study set out to answer?

To develop and evaluate a prototype federated query network that identifies technical, regulatory, and governance challenges in querying distributed clinical data repositories.

July 1, 2009Journal of the American Medical Informatics AssociationOpen Access

The Shared Health Research Information Network (SHRINE): A Prototype Federated Query Tool for Clinical Data Repositories

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To develop and evaluate a prototype federated query network that identifies technical, regulatory, and governance challenges in querying distributed clinical data repositories.
Built local clinical data repositories using the open-source Informatics for Integrating Biology and the Bedside (i2b2) platform across three Harvard-affiliated health centers.
Engineered a central Query Aggregator Interface under Institutional Review Board approvals to simultaneously broadcast distributed queries and aggregate patient counts.
Successfully deployed a functional multi-institutional prototype that executes simultaneous queries and returns aggregated patient counts while preserving local institutional control.
Established an inter-institutional regulatory and technical roadmap to support future expansion toward sharing identifiable patient data and biospecimens across a national network.

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Implication

Systems development study demonstrates federated querying across hospital clinical data repositories, highlighting a scalable architectural roadmap for national health research networks.

Cite This Study

Weber et al. (2009) studied this question.

synapsesocial.com/papers/6a17e8e9cf02a40e68b44bed https://doi.org/10.1197/jamia.m3191

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Implication

Systems development study demonstrates federated querying across hospital clinical data repositories, highlighting a scalable architectural roadmap for national health research networks.

The Shared Health Research Information Network (SHRINE): A Prototype Federated Query Tool for Clinical Data Repositories

Key Points

Discussion

Implication

Cite This Study

The Shared Health Research Information Network (SHRINE): A Prototype Federated Query Tool for Clinical Data Repositories

Key Points

Discussion

Implication

Cite This Study

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