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May 29, 2026The Cleft Palate-Craniofacial JournalOpen Access

Experiences of Parents Expecting a Child with a Cleft: A Qualitative Interview Study into Healthcare Provision and Parental Concerns

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Authors

MHMariska van Veen-van der HoekErasmus MCRMRebecca MeuldijkErasmus MC - Sophia Children’s HospitalJOJolanda OkkerseErasmus MC - Sophia Children’s Hospital

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Implication

Qualitative interview study explores parental experiences and concerns during pregnancy with cleft diagnosis, highlighting care improvements.

Key Points

  • This study examines how parents experience pregnancy following a prenatal diagnosis of cleft lip or palate, focusing on their concerns and perspectives.
  • Participants were interviewed between 24 to 39 weeks of gestation using semi-structured interviews.
  • Data were analyzed through inductive reflexive thematic analysis.
  • Eleven expectant mothers and eight expectant fathers were recruited from a university medical center.
  • Parents described receiving a cleft diagnosis as an emotional rollercoaster with significant uncertainties.
  • Cleft care did not adequately support parents in processing their emotions following the diagnosis.
  • Results point to the necessity for tailored cleft care that includes empathetic support from healthcare providers.

Cite This Study

Hoek et al. (2026) studied this question.

synapsesocial.com/papers/6a192e68fab5b468c4417693https://doi.org/10.1177/10556656261453764
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Standards for Reporting Qualitative Research2014 · 12,552 citations
  2. 2Termination of pregnancy for fetal anomalies: Parents' preferences for psychosocial care2019 · 25 citations
  3. 3Parental response to severe or lethal prenatal diagnosis: a systematic review of qualitative studies2017 · 47 citations
  4. 4Maternal Stress and Preterm Birth2002 · 855 citations
  5. 5Physicians and the Communication of "Bad News": Parent Experiences of Being Informed of Their Child's Cleft Lip and/or Palate1995 · 98 citations