Key result
Novel systematic linkage across NHS datasets successfully captures value-based heart failure outcomes and costs.
Why the study?
NHS information systems are often multiple and not integrated, prompting the development of a systematic approach to collect, validate, and analyse data across multiple sources to capture heart failure outcomes for future VBHC models.
Cohort (n=134)
No
A purpose-built database successfully integrated disparate NHS information systems to capture outcomes and costs for heart failure patients, demonstrating the feasibility of implementing value-based healthcare models.
May enable value-based HF outcome tracking via NHS data linkage; leaves open effects on care or costs without prospective validation.
BACKGROUND: Information systems within the National Health Service (NHS) are often multiple and not necessarily integrated to one another. We therefore developed a systematic approach to collecting, validating and analysing data from multiple sources and information systems, with the aim of designing and endorsing an automatic system to capture health outcomes data in heart failure to support future VBHC models. METHODS: A retrospective cohort of heart failure patients with reduced ejection fraction undergoing Implantable Cardioverter Defibrillator (ICD) or Cardiac Resynchronization Therapy (CRT) procedures within a limited geographical area in South London were evaluated. A purpose built database was created to integrate, transform and validate health care data from multiple information systems. RESULTS: Validation analysis shows that our implemented methodology has produced a robust dataset. Our limited cohort of 134 patients does not allow for any complex statistical analysis however has identified some important themes related to outcomes and costs. CONCLUSION: We have created a validated database specific to our Trust that can be upscaled locally with ease and transferred to other health diseases. Due to variations in local procedure from one Trust to another, this methodology now requires implementation across multiple sites to understand differences in transformation of data and outcome measuring.
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Burnhope et al. (2020) conducted a cohort in Heart Failure with reduced Ejection Fraction (HFrEF) (n=134). Cardiac Implantable Electronic Device (CIED) procedure was evaluated on Feasibility of creating a validated database integrating health care data from multiple information systems for value-based health care. A systematic methodology successfully integrated retrospective data from multiple NHS systems to create a validated database for evaluating value-based healthcare outcomes and costs in heart failure patients.
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