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June 2, 2012Journal of Clinical Nursing

Quality of life in asymptomatic children and adolescents before and after diagnosis of hypertrophic cardiomyopathy through family screening

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Why the study?

Does diagnosis of hypertrophic cardiomyopathy through family screening negatively influence quality of life in asymptomatic children and adolescents?

Population

54 asymptomatic children and adolescents, including 13 diagnosed with hypertrophic cardiomyopathy at family…

Comparison

Diagnosis of hypertrophic cardiomyopathy through… vs Healthy children/adolescents with a first-degree…

Design

Case-control

Follow-up

2 years

Authors

EBEwa‐Lena BrattIÖIngegerd Östman‐SmithÅAÅsa Axelsson

Discussion

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Overview

May reassure clinicians on QoL safety of family screening for pediatric HCM; leaves open confirmation in prospective trials.

Structured PICO

Does diagnosis of hypertrophic cardiomyopathy through family screening negatively influence quality of life in asymptomatic children and adolescents?

P
Population
54 asymptomatic children and adolescents, including 13 diagnosed with hypertrophic cardiomyopathy (HCM) at family screening (median age 11, 11 boys) and 41 healthy controls with a first-degree relative diagnosed with HCM (median age 11, 22 boys).
I
Intervention
Diagnosis of hypertrophic cardiomyopathy through family screening
C
Comparator
Healthy children/adolescents with a first-degree relative diagnosed with HCM
O
Outcome
Quality of life measured using a questionnaire by Lindström incorporating objective and subjective aspects of external, interpersonal, and personal spheres before and two years after diagnosispatient reported

Family screening and subsequent diagnosis of hypertrophic cardiomyopathy in asymptomatic children and adolescents does not negatively impact their quality of life.

Cite This Study

Bratt et al. (2012) studied this question.

synapsesocial.com/papers/6a1bc9c926cb5670aa9ce324https://doi.org/10.1111/j.1365-2702.2012.04108.x
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