Why the study?
Follow-up care for adults with congenital heart disease is frequently not performed by specialized physicians or centers despite the risk of major long-term complications, and treatment regimens for acquired heart disease cannot necessarily be applied.
Adults with congenital heart disease require specialized follow-up care to manage complex long-term complications such as infective endocarditis, pulmonary hypertension, and aortopathy.
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Underscores need for dedicated adult congenital heart disease services; leaves open optimal follow-up frequency and implementation models.
Despite relevant residua and sequels, follow-up care of adults with congenital heart disease (ACHD) is too often not performed by/in specialized and/or certified physicians or centers although major problems in the long-term course may develop. The most relevant encompass heart failure, cardiac arrhythmias, heart valve disorders, pulmonary vascular disease, infective endocarditis (IE), aortopathy and non-cardiac comorbidities. The present publication emphasizes current data on IE, pulmonary and pulmonary arterial hypertension and aortopathy in ACHD and underlines the deep need of an experienced follow-up care by specialized and/or certified physicians or centers, as treatment regimens from acquired heart disease can not be necessarily transmitted to CHD. Moreover, the need of primary and secondary medical prevention becomes increasingly important in order to reduce the burden of disease as well as the socioeconomic burden and costs in this particular patient group.
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Neidenbach et al. (2018) studied this question.
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