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This article reports the research that resulted in the authors' identifying 18 core concepts of policy affecting families who have children with disabilities. It sets out the research methodology; defines the 18 core concepts; distinguishes between policy that affects primarily individuals with disabilities on the one hand and policy that affects the families of children with disabilities on the other hand; and deliberately does not discuss generic "family policy," even though families affected by disability are also influenced by that body of policy.
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Turnbull et al. (2001) studied this question.
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