Key result
A patient-centered health data sharing platform successfully aggregated electronic health record, pharmacy, personal digital device, and patient-reported outcome data for patients over an 8-week post-procedure period.
Why the study?
Real-world data sources are often siloed and cannot be easily integrated for clinical, research, or regulatory purposes.
Does a patient-centered health data sharing platform successfully aggregate real-world data from multiple sources in patients undergoing bariatric surgery or atrial fibrillation ablation?
Cohort (n=60)
Yes
Does a patient-centered health data sharing platform successfully aggregate real-world data from multiple sources in patients undergoing bariatric surgery or atrial fibrillation ablation?
A patient-centered health data sharing platform can successfully aggregate real-world data from EHRs, pharmacies, digital devices, and PROMs for patients undergoing procedures like atrial fibrillation ablation.
Real-world data sources, including electronic health records (EHR) and personal digital device data, are increasingly available, but are often siloed and cannot be easily integrated for clinical, research, or regulatory purposes. We conducted a prospective cohort study of 60 patients undergoing bariatric surgery or catheter-based atrial fibrillation ablation at two U.S. tertiary care hospitals, testing the feasibility of using a patient-centered health data sharing platform to obtain and aggregate health data from multiple sources. We successfully obtained EHR data for all patients at both hospitals, as well as from 10 additional health systems, which were successfully aggregated with pharmacy data obtained for patients using CVS or Walgreens pharmacies, personal digital device data from activity monitors, digital weight scales, and single-lead ECGs, and patient-reported outcome measure data obtained through surveys to assess post-procedure recovery and disease-specific symptoms. A patient-centered health data sharing platform successfully aggregated data from multiple sources.
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Dhruva et al. (2019) conducted a cohort in Bariatric surgery or catheter-based atrial fibrillation ablation (n=60). Patient-centered health data sharing platform (Hugo) and personal digital devices was evaluated on Feasibility of obtaining and aggregating health data from multiple sources (EHR, pharmacy, personal digital devices, and PROMs). A patient-centered health data sharing platform successfully aggregated electronic health record, pharmacy, personal digital device, and patient-reported outcome data for patients over an 8-week post-procedure period.
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