Aggregating multiple real-world data sources using a patient-centered health-data-sharing platform

Figures

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  Fig. 1. Rates of weekly personal digital device use and syncing over 8-week follow-up period among patients after bariatric surgery or atrial fibrillation ablation (n = 59). Data obtained over 8-week follow-up period for Fitbit Charge 2TM (all patients), Kardia Mobile (ablation patients only), and Withings Body Scale (bariatric surgery patients only). Procedure occurred at week zero.

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  Fig. 2. Average steps per day for patients who underwent bariatric surgery (n = 29). Bubble size corresponds to number of patients for whom data were synced. Procedure occurred on day 0. Negative days indicate pre-procedure data, when available. Data obtained via Fitbit Charge 2TM.

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  Fig. 3. Average steps per day for patients who underwent atrial fibrillation ablation (n = 30). Bubble size corresponds to number of patients for whom data were synced. Procedure occurred on day 0. Negative days indicate pre-procedure data, when available. Data obtained via Fitbit Charge 2TM.

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  Fig. 4. Average cumulative weight change from baseline for patients who underwent bariatric surgery (n = 29). Bubble size corresponds to number of patients for whom data were synced. Procedure occurred on day 0. Data obtained via Withings Body Scale.

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  Fig. 5. Average heart rate per day for patients who underwent atrial fibrillation ablation (n = 30). Bubble size corresponds to number of patients for whom data were synced. Procedure occurred on day 0. Negative days indicate pre-procedure data, when available. Data obtained via AliveCor Kardia Mobile.

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  Fig. 6. Percentage of post-procedure recovery and disease-specific patient-reported outcome measure questionnaires answered. Post-procedure recovery questionnaires were obtained twice weekly for a total ten questionnaires post-procedure. Disease-specific questionnaires were obtained at 1, 4, and 8 weeks post-procedure. Data are stratified by patients who underwent atrial fibrillation ablation and bariatric surgery.

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  Fig. 7. Responses to post-procedure recovery patient-reported outcome measure questionnaires about pain and appetite among postoperative bariatric surgery patients. Post-procedure patient-reported outcome measure questionnaires were sent twice weekly, on Mondays and Thursdays, for a total of ten instances post-procedure. Regarding pain, patients were asked, “Do you have any pain (yes/no)?” and if they answered yes, were asked “How would you rate your pain?” (1 being mild, 10 being severe on a visual analog scale). Regarding appetite, patients were asked, “Do you have an appetite (yes/no)?” and if they answered yes, were asked “How strong is your appetite?” (1 being weak, 10 being strong on a visual analog scale). Bubble size corresponds to number of patients for whom patient-reported outcome measure questionnaire data were available.

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  Fig. 8. Responses to post-procedure recovery patient-reported outcome measure questionnaires about pain and palpitations among patients undergoing atrial fibrillation ablation. Post-procedure patient-reported outcome measure questionnaires were sent twice weekly, on Mondays and Thursdays, for a total of ten instances post-procedure. Regarding pain, patients were asked, “Do you have any pain (yes/no)?” and if they answered yes, were asked “How would you rate your pain?” (1 being mild, 10 being severe on a visual analog scale). Regarding palpitations, patients were asked, “Do you have any palpitations (yes/no)?” and if they answered yes, were asked “How would you rate your palpitations?” (1 being mild, 10 being severe, on a visual analog scale). Bubble size corresponds to number of patients for whom patient-reported outcome measure questionnaire data were available.

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  Fig. 9. Data aggregated using the Hugo platform. This figure demonstrates the 4 electronic health data sources aggregated in this study: patient reported outcome measures, electronic health record data, pharmacy data, and personal digital device data.