Key result
Implementation of the International Cardiac Rehabilitation Registry in low-resource settings was feasible, capturing 85.6% of eligible patients with an 89.5% preprogram variable completion rate and acceptable data entry times.
Why the study?
The International Cardiac Rehabilitation Registry was developed to help programs in low-resource settings optimize care and patient outcomes, requiring assessment of its implementation, data steward experience, and patient acceptability.
Observational (n=567)
Yes
The International Cardiac Rehabilitation Registry is feasible to implement in low-resource settings, with high data completion rates and positive user acceptability.
The International Council of Cardiovascular Prevention and Rehabilitation developed an International Cardiac Rehabilitation (CR) Registry (ICRR) to support CR programs in low-resource settings to optimize care provision and patient outcomes. This study assessed implementation of the ICRR, site data steward experience with on-boarding and data entry, and patient acceptability. Multimethod observational pilot involves (I) analysis of ICRR data from three centers (Iran, Pakistan, and Qatar) from inception to May 2022, (II) focus group with on-boarded site data stewards (also from Mexico and India), and (III) semistructured interviews with participating patients. Five hundred sixty-seven patients were entered. Based on volumes at each program, 85.6% of patients were entered in ICRR. 99.3% patients approached consented to participate. The average time to enter data at pre- and follow-up assessments by source was 6.8-12.6 min. Of 22 variables preprogram, completion was 89.5%. Among patients with any follow-up data, of four program-reported variables, completion was 99.0% in program completers and 51.5% in none; of 10 patient-reported variables, completion was 97.0% in program completers and 84.8% in none. The proportion of patients with any follow-up data was 84.8% in program completers, with 43.6% of noncompleters having any data entered other than completion status. Twelve data stewards participated in the focus group. Main themes were valuable on-boarding process, data entry, process of engaging patients, and benefits of participation. Thirteen patients were interviewed. Themes were good understanding of the registry, positive experience providing data, and value of lay summary and eagerness for annual assessment. Feasibility and data quality of ICRR were demonstrated.
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Grace et al. (2023) conducted an observational in Cardiovascular Disease (n=567). International Cardiac Rehabilitation Registry (ICRR) implementation was evaluated on Preprogram variable completion rate. Implementation of the International Cardiac Rehabilitation Registry in low-resource settings was feasible, capturing 85.6% of eligible patients with an 89.5% preprogram variable completion rate and acceptable data entry times.
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